Strategic aims agreed following patient panel meetings

The strategic aims of PHocus2021 have been agreed following meetings with patients and caregivers involved in the project.

Pulmonary hypertension patients, along with their partners and carers, gathered at the PHA UK Resource Centre in Sheffield for discussion and debate with members of the steering committee.

Four strategic aims were agreed, all with the common objective of helping pulmonary hypertension patients live better with the condition.

The aims agreed are:

  • Reduce time to diagnosis for pulmonary hypertension;
  • Improve the overall health, wellbeing and quality of life of patients with PH and their kinship, based on their needs and preferences;
  • Ensure equity of access in the UK to evidence-based PH treatments for all;
  • Reduce financial hardship incurred by living with PH.

The results of a major survey conducted by the PHA UK last year, which saw over 500 patients share their lived experiences of PH, were also taken into account when setting the aims.

Iain Armstrong, Chair of the PHA UK, said: “Involving patients and their kinship in the strategic direction of PHocus2021 is absolutely key and we’re grateful to those who lend their time and voices to the campaign. There is a lot of work ahead, but we’re all determined to fight hard for the aims and objectives we’ve agreed upon.”

The PHocus2021 group consists of a patient panel, made up of patients and carers, and a steering committee consisting of PH clinicians, primary care practitioners, academia representatives and an executive trustee.

The group is co-chaired by Iain Armstrong, Chair of the PHA UK, and Professor Paul Corris of the Freeman Hospital in Newcastle.

You can find out more about each of the agreed strategic aims here.