Patient Voices #BreathlessNotVoiceless

Bunty Cloy

“Bobby’s condition has brought huge changes to our day-to-day lives.”

Bunty Cloy’s husband Bobby was diagnosed with PH in 2016, having a big impact on their lives in Dumfries and Galloway, Scotland.

“Bobby’s condition has brought huge changes to our day-to-day lives. He is a now on oxygen therapy 24/7 and uses his nebuliser seven times a day. He was a very sociable man and a great supporter of our local community, being president of two bowling clubs and a founder member of a boxing club. Sadly, these are pastimes he is no longer able to enjoy.

We have had to make a lot of adjustments to our lifestyle over the last 18 months. We enjoyed weekends away with friends and trips up the country to visit our daughter and sons and their families. Unfortunately, some of their homes are not easily accessible for Bobby, so these visits are no longer an option for us.

Our nearest supermarket is 15 miles away so going shopping is a bit of a marathon, for example making sure we have enough oxygen and nebuliser meds with us, and having to watch the clock all the time.

I try to encourage Bobby to do what he can for himself so he still feels he has a bit of independence. We now have a level access shower fitted and this has been a tremendous help and has given him more confidence with his washing and dressing.

This condition was something totally unknown to us and we had no idea what lay ahead. Because of all the stress of Bobby’s health deteriorating rapidly the previous year, in a strange way it was a relief to have the diagnosis, but we also had a great fear of the unknown and worry about whether the doctors would be able to help him.”