Get involved with the PHocus2021

Get Involved

We need your voice to help us put a political PHocus on pulmonary hypertension. Here’s how you can get involved.


Share your PH story.

Tell us how pulmonary hypertension affects your life and add your voice to the campaign.

The patient voices section of this website helps us shout louder about the issues that matter. And the more voices there are, the higher the chance is of them being heard.

We also often need people to share their stories and experiences to help inform our media work, to raise awareness of pulmonary hypertension and help people understand the condition and its impact.

We work with an external communications agency so if you choose to help us, you’ll receive expert guidance and support, and will play a key part in raising awareness of important issues.

If you live with PH, or care for someone who does, contact us to make your voice heard.


Join the conversation on social media.

Follow PHA UK on Twitter @PHA_UK and on Facebook @PULHAUK and use the hashtag #PHocus2021

The second annual PH Awareness Week  runs from 20th – 27th November 2017 and will play an important part in getting our messages in front of the people that matter.


Write to your MP.

It’s important that MPs hear the real experiences of people living within their constituency, but to have the most impact it is best that these are coordinated and are asking for the same thing.

PHocus2021 will be launching several campaigns this year and we will provide template letters to help you write to your Member of Parliament.


Are you a health professional?

Contact us to find out how you can help the work of PHocus2021.


You can also support the work of PHocus2021 by fundraising for PHA UK.